Some of us consider all dementia care to be palliative care (until we have something that stops or reverses the neurodegenerative process). Others consider the end of life decision-making (stop certain medications, forego resuscitation) to be palliative care. Thank you to the LEAD Coalition for bringing this transcription of interview with Dr. Arif Kamal of Duke University to my attention and to share with you! Even if you don’t have dementia, we are all headed to an end of this life…can we plan or at least be clear about our preferences for that end? The answer is yes, but not if we don’t talk about it while we can.
Here’s an example of the refreshing straight talk,
”Not being affected by others’ suffering that you are present for is like thinking you can stand next to a big waterfall and not get a little wet.”
And here’s the American Academy of Neurology’s supportive stance.
Would you like to participate in supporting legislation to expand training and awareness of palliative care in the US? PCHETA stands for the Palliative Care and Hospice Education and Training Act. To write to your senator in support, go to http://patientqualityoflife.org/pcheta-action-center/
Info & Resources for Caregivers from Dr. Chow 